Commonly associated symptoms of Ehlers Danlos Syndrome (EDS), a group of genetic connective tissue disorders with a number of subtypes, include joint hyper-mobility (double-jointed), extreme fatigue, brain fog, severe chronic and acute joint pain, poor wound healing, hernias, bruising easily with stretchy skin, gastrointestinal complaints, dislocations, subluxations and more.

 

Many patients experience cardiovascular, musculoskeletal and neurological complications. Raynaud’s phenomenon is also often found along with EDS. Dysautonomia symptoms can be present in EDS patients, affecting the heart rate, blood pressure and breathing with coexisting conditions such as postural orthostatic tachycardia syndrome (POTS). Many suffering with EDS are affected by mast cell activation syndrome (MCAS) and present with numerous sensitivities, as well as allergies to foods, chemicals and medications, leading to anaphylactic reactions. Patients may also experience hives, nasal congestion, headaches, brain fog, fatigue and gastrointestinal symptoms.

 

It is important for patients to receive an EDS diagnosis so they are aware of the critical need for lifestyle changes, including addressing and managing inflammation in the body, treating coexisting conditions, dietary changes and making-self care a priority. They need to be aware of their limitations such as added rest, hydration and adequate nutrition in order to maintain energy levels. Gentle exercises such as yoga (with an emphasis on not overextending joints, tendons and ligaments), walking and therapies such as CranioSacral Therapy, physical/occupational therapy, pelvic floor therapy, support groups and counseling are all key.

 

Carrie Tetkoskie, RN, BSN, is the owner of Loving Heart Blissful Soul, CranioSacral Therapy practice in Cumberland County, and facilitator of Healing Hearts of PA EDS Support Group. For more information, call 717-603-1732 or visit Tinyurl.com/LovingHeartBlissfulSoul. See listing,